Race, Ethnicity, Language, Disability, Tribal Affiliation Data Standards Guide

Inclusion of Voluntary and Disclosure Clauses

Before undertaking any public data collection efforts or developing bureau standards, check with the City Attorney’s Office regarding the inclusion of voluntary and/or disclosure clauses. The following are examples  - do not replicate without first checking with City Attorneys. 

Public Records Disclosure Clause Examples:

• The information you are providing on this form is available to the public through a public records request. Please do not include confidential or sensitive information.

• Information you provide to the City is a public record and may be subject to release under Oregon’s Public Records Law. This law classifies certain information as available to the public on request. See our privacy statement for more information.

• I am submitting this information with the expectation that it will be kept in confidence, and that the City will only release the information if ordered to do so. __Yes __No

• I understand that the City of Portland intends to keep this information confidential but may release the information if ordered to do so. __Yes __No

• Application: The City of Portland intends to keep the information you provide on this application confidential, but may be required to share the information under public records law. Please indicate which response you find appropriate: (your answer will not disqualify you from the process):

___ My application was submitted with the understanding that the City of Portland would keep the information confidential and would only disclose the information if ordered to do so. I would not have submitted this application without the promise of confidentiality.

___ You may share my application; I am waiving confidentiality.

• Voluntary Demographic Form Clause Example: Completion of this section is not required and is therefore completely voluntary. Portland is committed to diversity, equity, and inclusion and uses provided demographic information to help ensure that services reach a broad cross section of community. State and federal law prohibit use of this information to discriminate against you.

 I have read the above explanation of how voluntary demographic information will be used. I agree and consent to sharing my voluntary demographic information.

•  Yes 
•  No (if no, do not fill out questions)

Sharing Information with the Public

Include an introductory statement, or message to respondents, that includes the following information in addition to a disclosure clause:

• Purpose of collecting demographics and/or in connection with our commitment to equity
  • We ask about race, ethnicity, language, disability, tribal affiliation, and gender [add in other categories asked] in order to ensure representation in the work we do, provide the best services and policies, and to reduce inequities and disparities.
  • Portland is committed to diversity, equity, and inclusion and uses provided demographic information to help ensure that services reach a broad cross section of community.
  • Portland is committed to equity, justice, and inclusion and uses provided demographic information in order to ensure representation in the work we do, provide the best services and policies, and to reduce inequities and disparities.
• Nondiscrimination Statement (if the demographics are being part of any application, provision of services, or decision-making process).
  • State and federal law prohibit use of this information to discriminate against you.
• Transparency
  • Provide a link where they can find out more information and/or the demographic definitions (definitions in glossary below).
• Voluntary
  • If not included in a voluntary and disclosure clause above, please make sure to indicate that completion of demographics is completely voluntary and the respondent has the right to decline to answer any and all questions, as well as the right to of selecting or providing multiple designations or responses. 

Standards - Categories and Subcategories

Design standards are flexible (accommodations for space limitations, formatting, etc.).  The standards for the data are provided in question-and-answer format in case forms need to be created.  While we’ve provided a question under each category, it is not required. You may also list the category and provide answer selections if necessary and after sharing information with the public. 

Again, both a minimum and comprehensive set of standards are provided under each category except for Tribal Affiliation. 

Bureaus should weigh privacy, needs, use, size, context, etc., to determine whether to use the minimum, comprehensive, or combination of standards. Bureaus also may collect additional levels of detail but should design collection strategies in a manner that aggregates back to these Demographic standards. 

Review any collection requirements from other agencies. Please consider concerns with aggregation and comparison. When necessary, the City, the bureaus and bureau contractors and subcontractors may adhere to alternative standards to comply with differing data collection and reporting requirements.

General FAQs: Content for this section to be developed (including rationale, intent or purpose, and specifics about category and subcategories). Until this is ready, you can visit the Oregon Health Authority REALD Implementation Guide for similar information on why this data collection matters, history of these standards, general FAQs, benefits and purpose.  

Race and Ethnicity

American Indian or Alaska Native

• American Indian
• Alaska Native
• Canadian Inuit, Metis or First Nation
• Indigenous Mexican, Central or South American

Asian

• East Indian
• Cambodian
• Chinese
• Communities of Myanmar
• Filipino/a
• Hmong
• Korean
• Japanese
• Laotian
• South Asian
• Vietnamese
• Other Asian

Black or African American

• African American or Black
• African (Black)
• Afro-Caribbean (Black)
• Other Black

Latino/a/e/x or Hispanic

• Mexican
• Central American
• South American
• Other Latino/a/e/x or Hispanic

Native Hawaiian or Pacific Islander

• Native Hawaiian
• Chamorro
• Marshallese
• Micronesian
• Samoan
• Tongan
• Other Pacific Islander

Middle Eastern/North African

• Middle Eastern
• North African

White

• Eastern European
• Western European
• Slavic
• Other White

Not listed above, please describe ___________

I prefer not to answer

Race and Ethnicity – Recommended formatting and optional considerations

• You may provide a question or just use a category header. If you opt for the header, please use Race and Ethnicity or Race/Ethnicity. 
• If you ask a question, we recommend:
  • Which of the following describes your racial or ethnic identity? 
    • Please select ALL that apply.
• You should include the separate answer option “I prefer not to answer” after the not listed selection.
• Optional Open-ended Question: You may include an open-ended question first to solicit further detail and self-identification (in addition to the structured answer selections) or you may decide to ask an open-ended question to allow for unrestricted response. 
  • Please be aware this may be extremely taxing on the coding and analysis side. 
  • Please make sure all answers are coded in a way that aggregate to the above answer standards (categories).
  • [Open ended] How do you identify your race, ethnicity, tribal affiliation, or ancestry?

Race and Ethnicity FAQs: Content for this section to be developed (including rationale, intent or purpose, and specifics about category and subcategories)

Language

Language [Minimum]

• Language(s) spoken or signed at home: ___________________
• I prefer not to answer

Language [Comprehensive]

• Language(s) spoken or signed at home: ___________________
• I prefer not to answer

How well do you speak English?

• Very Well
• Well
• Not Well
• Not at All
• Don’t know
• I prefer not to answer

Language Categories – Recommended formatting and optional considerations

• Additional Optional Question (highly recommended):
  • Language preference:   Written: _________        Spoken or Signed: _____________                    I prefer not to answer
• Recommended Order
  • Languages used at home
  • Language preference
  • Language proficiency
• Formatting:
  • You can provide a list of answer options instead of leaving the answer open-ended.  Similar to Race and Ethnicity, having the languages being pre-formatted is extremely helpful for data analysis because it pre-organizes the data; however, open-ended options are preferred.  If you decide to provide language categories, at minimum include Portland’s language list, English, and American Sign Language.  You may want to consider including languages most frequently spoken in Portland or the Portland Metro Area.  Please talk with your outreach team and/or the City’s Language Access Analyst to determine appropriate, predefined answer categories.  If you list options, provide an “other” answer category with the space for the respondent to write in or provide their specific language. 

Example:

Language(s) spoken or signed at home:

• Spanish: Español
• Vietnamese: Tiếng Việt
• Chinese: 中文
• Russian: Русский
• Romanian: Română
• Ukrainian: Україньска
• Japanese: 日本語
• Somali: Soomaali
• Arabic: عربي
• Laotian: ລາວ
• English
• American Sign Language
• Not listed, please describe:__________________________
• I prefer not to answer

---------

• If directly and continuously engaging with the respondent, you should consider asking additional/optional question to ascertain meaningful and effective communication needs and preferences.

Language FAQs: Content for this section to be developed (including rationale, intent or purpose, and specifics about category and subcategories)

Disabilities

Disabilities [Minimum]

Do you identify with having or living with a disability?

• Yes
• No
• I prefer not to answer

If yes, please describe the nature of your disability. Select ALL that apply:

• Mobility or other physical disabilities
• Visual
• Hearing
• Intellectual, Developmental, Cognitive
• Speech or Communication
• Mental Health
• Neurodivergence
• Invisible
• Not listed above, please describe: ____________________________
• I prefer not to answer

Disabilities [Comprehensive]

Do you identify with having or living with a disability?

• Yes
• No
• I prefer not to answer

Do you find it challenging to access City events, programs, or services due to of lack of accessibility or a need for additional support?        

• Yes             
• No
• I prefer not to answer

If yes, please describe the nature of your need for additional access. Select all that apply:

• Mobility or other physical (Do you have serious difficulty walking, standing, sitting, or climbing stairs?)
• Visual (Do you have serious difficulty seeing. Do you use a screen reader, large print etc.?)
• Hearing (Do you have difficulty hearing, do you use sign language, live captions, etc.?)
• Intellectual, Developmental, Cognitive (Do you have difficulty concentrating, remembering, understanding, or making decisions?)
• Speech or Communication (When using your usual language, do you have difficulty communicating?)
• Mental Health (Do you have difficulty with mood, behavior, or thinking even with medication?)
• Neurodivergence (Do you have difficulty due to sensory, social, or information processing?)
• Invisible (Do you have a disability that is not readily apparent by your general appearance)
• Not listed above, please describe: ____________________________
• I prefer not to answer

Disabilities Categories – Recommended formatting and optional considerations

• SEE in-depth Disability Demographic Data Collection Guidance section below
• Include the following messaging to the public: 
  • Government programs, services, and events sometimes have barriers that prevent people with all kinds of bodies/minds from being part of what we offer. We want to understand and eliminate these barriers. We’re asking these questions so we can plan easier-to-access programs, services, and events.
• Data Security is paramount (especially if dealing with confidential data)
• Direct individuals to definitions and additional descriptions if using the condensed fields
• These are distinctly different from federal reporting!  While we’ve tried to align for general comparison, bureaus should check reporting requirements or comparative needs to decide if it is necessary to use federal and state standards.
• Because of the sensitive nature of this information, it is critically important to include the do not wish to disclose option to participants.

Disabilities FAQs: Content for this section to be developed (including rationale, intent or purpose, and specifics about category and subcategories)

American Indian/Alaska Native Tribal Affiliation

Are you an enrolled member, and/or a descendant, of a Federal or State recognized American Indian Tribe or Alaskan Native Village/Corporation? Mark and describe all that applies.

• Enrolled Member. Tribal Affiliation(s): ­­­­­­­­­­­­­____________________________
• Descendant. Tribal Affiliation(s): ­­­­­­­­­­­­________________________________
• I am not an enrolled member or descendant of a federally or state-recognized American Indian Tribe or Alaska Native Village Corporation.
• I prefer not to answer

Tribal Affiliation Category – Recommended formatting and key considerations

• Key Consideration: This question relates to sovereignty and associated rights/benefits, not specifically race, ethnicity or ancestry. Don’t dilute the language.
• Please consider open-ended question soliciting greater detail in Race/Ethnicity if you want to collect information on Tribal or Indigenous identity/ancestry
• Formatting:
  • Question presents if “American Indian or Alaska Native” is selected in the Race/Ethnicity category

American Indian/Alaska Native Tribal Affiliation FAQs: Content for this section to be developed (including rationale, intent or purpose, and specifics about category and subcategories)

Glossary

“American Indian or Alaska Native” means an individual having origins in any of the original peoples of North and South America (including Central America) and maintaining a tribal affiliation or community attachment.  This includes but is not limited to individuals defined under those with tribal affiliation.

“American Indian/Alaska Native Tribal Affiliation” means an individual who is:

(a) a member (as defined by the Indian tribe or band) of an Indian tribe, village, or band, including those Indian tribe or bands terminated since 1940, and those recognized by the State in which the tribe or band reside; or

(b) a descendant in the first or second degree (parent or grandparent) as described in (a); or

(c) considered by the Secretary of the Interior to be an Indian for any purpose; or

(d) an Eskimo or Aleut or other Alaska Native.

“African” means an individual identifying with or descending from any of the racial groups of Africa whose national origin is from a country on the continent of Africa.

“African American or Black” is a federal demographic category meaning an individual identifying with or descending from any of the black racial groups of Africa.

“Asian” is a federal demographic category meaning an individual identifying with or descending from any of the original peoples of East Asia, Southeast Asia, or South Asia including, for example, Cambodia, China, India, Japan, Korea, Malaysia, Pakistan, the Philippine Islands, Thailand, and Vietnam.

"Bureau” means any of the bureaus or offices of the City of Portland.

“City” means the City of Portland.

“Declined to answer” is a demographic designation used when the individual actively chooses not to provide information on their race or ethnicity, language, disability, or tribal affiliation.

“Demographic data” means collected information related to age, gender, race, ethnicity, preferred spoken, signed and written language, disability status, and tribal affiliation. Demographic data under these rules will be collected for the purpose of better understanding populations who interact with, are served by, and are impacted by the City and its bureaus.

“Disability, identify with having or living with a disability” is a catch all for disability identity. This can be very helpful in assessing whether the data you collected is close to the percentage of people living in Portland with disabilities.  Based on Multnomah County data, roughly 17-22% of individuals identify as having some kind of disability.  If your survey results show 17-22% of the respondents answered “yes” to the first question you know you have done well accessing the general population of people with disabilities. In other words, your results are representative of the larger population.

Also defined under ORS 659A.104; Section 504 of the Rehabilitation Act, or the Americans with Disabilities Act of 1990.

“Ethnicity” means a demographic designation for a group of people sharing a culture that includes race, religion, language, and other cultural characteristics including ancestry or country of origin.

“Hearing” is capturing people who identify as being Deaf or hard of hearing.  We emphasized interpretation and assistive technology as this important information for bureaus who need to be able to accommodate requests for not only ASL interpreters and CART, but also sign language in other languages and assistive listening devices for people who use hearing aids.

“Intellectual, Developmental, Cognitive” is capturing people who identify as living with a developmental, cognitive, or intellectual disability.  This can include, but is not limited to, people who live with brain injury, Downs Syndrome, and dementia.

“Invisible” is capturing people who live with disabilities that can limit their ability to perform one or more task of daily living but who are often overlooked in disability data collection because they may appear not to have a disability, or their disability is not always actively limiting them.  People with hidden disabilities can include but are not limited to individuals with chronic illnesses and/or chronic pain (e.g. HIV, Cancer, Fibromyalgia, Diabetes, a seizure disorder, or colitis). We feel it is important to capture people in this group though the data may not have a practical application without a deeper disaggregation.   

“Latino/a/e/x* or Hispanic” is a federal demographic category meaning an individual of Cuban, Mexican, Puerto Rican, Dominican, South or Central American, or other Spanish culture or origin, regardless of race.

*We use the term “Latino/a/e/x” as a inclusive alternative to “Latino” alone. In Spanish, the masculine version of a noun is gender neutral, but some advocates, mostly based in the United States, have called into question the neutrality of masculine nouns. Language evolves and more inclusive alternatives to “Latino” have included Latina/o and Latin@. We use Latino/a/e/x to intentionally include gender nonconforming and nonbinary people of Hispanic or Latin American origin who might not identify with the masculine or the feminine. Though a relatively new term believed to have originated in the Latino LGBTQ community, and not without dissent, Latinx is being increasingly adopted by advocates, universities, and even government agencies

 “Mental Health” is capturing people who identify as living with a mental health disability.  This can include but is not limited to people who live with depression, PTSD, Schizophrenia, bi-polar disorder that affects their mood, behavior, and thoughts. These effects may interfere with a person’s ability to make and maintain meaningful relationships, to care for themselves, and to carry out daily life functions (work, school, etc.). This information can be helpful to bureaus around delivering services using trauma informed practice and/or training staff in things like mental health first aid. 

“Mobility or other physical disabilities” is capturing people who use mobility devices such as walkers, wheelchairs, scooters, crutches, and canes as well as people who would require assistance entering or evacuating a building with stairs.

“Native Hawaiian or Other Pacific Islander” is a federal demographic category meaning an individual having origins in any of the original peoples of Hawaii, Guam, Samoa, or other Pacific Islands.

“Neurodivergence” is a nonmedical term capturing people who face barriers due to systems and processes that are not easily navigable for a nontypical brain. Neurodivergence affects all parts of an individual’s life including levels of sociability, learning, sensory stimulation, memory, and information processing. This category can help bureaus when developing plain language communication, program delivery, and evaluating the built environment.

“Not listed/Other” means an individual identifies with a demographic designation not listed.

“Race” means a demographic designation for a group of people who share a common heredity.

(a) Race includes shared ancestry, national origin and sociocultural characteristics.

(b) Race is not a biological, anthropological or genetic distinction.

“Speech or Communication” means an individual who identifies with having speech or communication disabilities.  This can include difficulty with speech and verbalization or being understood

“Visual” is capturing people who identify as being blind or low vision.  We emphasized assistive technology in this question as this is important information when creating outreach material and designing websites.

“White” is a federal demographic category meaning an individual having origins in any of the original peoples of, 

(a) Europe,

(b) the Middle East, 

(c) or North Africa.

(d) It includes people who indicate their race as "White" or report entries such as Irish, German, Italian, Lebanese, Arab, Moroccan, or Caucasian…

Additional Resources

• Oregon Health Authority.  Comprehensive REALD Guide
  • Includes additional information for strategies associated with small sample size; data quality, analysis, and reporting; collection methods; etc.  Please keep in mind Health-related data and personally identifiable information is governed under, subject to, and protected by different public information laws. 
• Oregon Health Authority REALD Website
• Documents Reveal ICE Using Driver Location Data From Local Police for Deportations
• Program Performance and Evaluation, Centers for Disease Control.
• Guiding Principles for Evaluators, American Evaluation Association.
• Privacy, confidentiality, and Data stewardship:  There are several guidance manuals, procedures, and best practices.  In addition to upfront survey design, weighing risks and consideration of when, if, and how to collect demographic data, and determining which standard (minimum or comprehensive) to use, bureaus (and contractors) should employ appropriate mechanisms or mitigation strategies, including:
  • Informed Consent
  • Aggregation
  • Anonymization
  • Pseudonymization

Contact bureau data analysts, data governance liaisons, IT analysts, City attorneys, and/or the Smart Cities Open Data Coordinator for additional information and guidance.

• About the Topic of Race
• Federal officials may revamp how Americans identify race, ethnicity on census and other forms
• Race and Multiracial Americans in the U.S. Census. Pew Research Center
• Is being Hispanic a matter of race, ethnicity or both? Pew Research Center
• Counting a Diverse Nation: Disaggregating Data on Race and Ethnicity to Advance a Culture of Health. PolicyLink
• Making the Case for Data Disaggregation to Advance a Culture of Health. PolicyLink
• Coalition of Communities of Color Research Justice website – includes a research justice vision, framework, and approach
• Leading with Race: Research Justice in Washington County. Coalition of Communities of Color
• The Politics of Data: Uncovering Whiteness in Conventional Social Policy and Social Work Research. Coalition of Communities of Color
• Community-Based Participatory Research: A Strategy for Building Healthy Communities and Promoting Health through Policy Change. PolicyLink
• The Promise of Community-Based Participatory Research for Health Equity: A Conceptual Model for Bridging Evidence with Policy
• DATA GEMS: How to Access Race Data on data.census.gov
• Explore Census Data
• National Equity Atlas
• UN Fundamental Principles for National Official Statistics
• What is Community Driven Research?

Disability Demographic Data Collection Guidance

Here we are defining our terms and how they relate to the American Community Survey (ACS).

“Do you identify with having or living with a disability?” is a catch all for disability identity. This can be very helpful in assessing whether the data you collected is close to the percentage of people living in Portland with disabilities.  Based on Multnomah County data, roughly 17-22% of individuals identify as having some kind of disability.  If your survey results show 17-22% of the respondents answered “yes” to the first question you know you have done well accessing the general population of people with disabilities. In other words, your results are representative of the larger population.

The first question correlates to ACS Disability Status defined by the ACS as: The U.S. Census Bureau used six questions to identify people with disabilities. A response of "yes" to any one of the questions indicates that the person in question has a disability (i.e. vision, hearing, cognitive, ambulatory, self-care, or independent living). However, the questions related to cognitive, ambulatory, self-care, and independent living are not used to identify disability in individuals less than five years old, and the question related to independent living is not used to identify disability in individuals less than 18 years old.

Mobility or other physical disabilities is capturing people who use mobility devices such as walkers, wheelchairs, scooters, crutches, and canes as well as people who would require assistance entering or evacuating a building with stairs.

This question correlates to what the ACS defines as an Ambulatory Disability: In the ACS, individuals five or more years old who responded "yes" when asked if they had "serious difficulty walking or climbing stairs."

Visual is capturing people who identify as being blind or low vision.  We emphasized assistive technology in this question as this is important information when creating outreach material and designing websites.

This question correlates to what the ACS defines as Vision Disability: In the ACS, individuals who indicated "yes" when asked if they were "blind or ... [had] serious difficulty seeing even when wearing glasses."

Hearing is capturing people who identify as being Deaf or hard of hearing.  We emphasized interpretation and assistive technology as this important information for bureaus who need to be able to accommodate requests for not only ASL interpreters and CART, but also sign language in other languages and assistive listening devices for people who use hearing aids.

This question correlates to what the ACS defines as Hearing Disability: In the ACS, individuals who indicated "yes" when asked if they were "deaf or ... [had] serious difficulty hearing."

Intellectual, Developmental, Cognitiveis capturing people who identify as living with a developmental, cognitive, or intellectual disability.  This can include, but is not limited to, people who live with brain injury, Downs Syndrome, and dementia.

This question correlates to what the ACS defines as Cognitive Disability: In the ACS, indi­viduals who indicated "yes" when asked if due to a physical, mental, or emotional condition, they had "serious difficulty concentrating, remember­ing, or making decisions."

Speech or Communicationis capturing people who identify having speech or communication disabilities.  This can include difficulty with speech and verbalization or being understood. People with speech and communication disabilities can often have an easier time with pictograms and or texting options or may benefit from amplification devices.

The ACS does not collect data related to Speech or Communication disabilities.

Mental Healthis capturing people who identify as living with a mental health disability.  This can include but is not limited to people who live with depression, PTSD, Schizophrenia, bi-polar disorder that affects their mood, behavior, and thoughts. These effects may interfere with a person’s ability to make and maintain meaningful relationships, to care for themselves, and to carry out daily life functions (work, school, etc.). This information can be helpful to bureaus around delivering services using trauma informed practice and/or training staff in things like mental health first aid.

Neurodivergence is a nonmedical term capturing people who face barriers due to systems and processes that are not easily navigable for a nontypical brain. Neurodivergence affects all parts of an individual’s life including levels of sociability, learning, sensory stimulation, memory, and information processing. This category can help bureaus when developing plain language communication, program delivery, and evaluating the built environment.

The ACS does not collect data related to Neurodivergence.

Invisible is capturing people who live with disabilities that can limit their ability to perform one or more task of daily living but who are often overlooked in disability data collection because they may appear not to have a disability, or their disability is not always actively limiting them.  People with hidden disabilities can include but are not limited to individuals with chronic illnesses and/or chronic pain (e.g. HIV, Cancer, Fibromyalgia, Diabetes, a seizure disorder, or colitis). We feel it is important to capture people in this group though the data may not have a practical application without a deeper disaggregation. 

Do not wish to disclose and Other:Unlike population data around disability, we felt it was important to give people the option of opting out of further identifying their disability as well as the option of self-identifying something that was not captured by our identifiers.

Note:

We chose not to capture two categories of the ACS data set. We felt these questions were much more useful for organizations that provide social services to people with disabilities.  If your bureau would like to utilize these ACS questions you may along with the questions we put forward for the standards, but be sure to consider what the data will inform before doing so.

Independent Living Disability (ACS): In the ACS, individuals who indicated "yes" when asked if due to a physical, mental, or emotional condition, they had difficulty "doing errands alone such as visiting a doctor's office or shopping."

Go-Outside-Home Disability (ACS): An individual with difficulty going outside the home alone to shop or visit a doctor's office because of a physical, mental, or emotional condition lasting at least six months.

RESOURCES:

The following websites may be helpful if you want to do a deeper dive into disability data:

How Disability Data are Collected from The American Community Survey 

How Disability Data are Collected from The Survey of Income and Program Participation (SIPP)

Link to the data that supports 17-22% of Portlanders live with a disability:

Oregon Disability Health Data and Statistics

Link to data support 35% of people over the age of 65 live with a disability:

A Profile of Older American 2017

Aggregation Crosswalk and Mapping Race and Ethnicity to other data collection standards

Please see the Aggregation/Rollup and Comparison Crosswalk:

Office of Management and Budget (OMB) establishes federal standards for race and ethnicity. Data reported to other agencies, such as the federal government, may need to be rolled-up into the OMB standards for race and ethnicity.

There are multiple rollup schemes for aggregating granular data with OMB standards.  Please look at methodology and coding reports from the Census Bureau, the ASC and PUMS, or consider using the CDC/HL7 code set.  There are over 900 race and ethnicity codes in the CDC/HL7 Code Set introduced in 2000.

For more information visit:

• CDC Developed Code Systems and PHIN Vocabulary
• Defining Categorization Needs for Race and Ethnicity Data - Race, Ethnicity, and Language Data: Standardization for Health Care Quality Improvement
• Implementation - Race, Ethnicity, and Language Data: Standardization for Health Care Quality Improvement
• 2000 HL7/CDC Race and Ethnicity Code Set
• Race and Ethnicity Code Set Version 1.0 Background
• HL7 Implementation Guide US Code Set or HL7 Code Set
• Revisions to the Standards for the Classification of Federal Data on Race and Ethnicity

Acknowledgements

The content of this guidance was inspired by and borrowed from great work happening around the country and region. Thank you for lending your expertise to these important efforts, including:

• Oregon Health Authority Office of Equity and Inclusion
• Multnomah County Public Health Department
• Coalition of Communities of Color
• City of Portland Office of Equity and Human Rights
• City of Portland Office of Government Relations
• Open Data and Data Governance Work Groups
• City of Portland Bureau of Transportation
• City of Portland Bureau of Planning and Sustainability
• City of Portland Office of Community and Civic Life
• City of Portland Bureau of Human Resources
• Center for Disease Control
• Department of Health and Human Services
• Department of Housing and Urban Development
• Multnomah County Office of Diversity and Equity
• PolicyLink